Cotswold Village

Cotswold Village
Started May 27, 2011

Saturday, April 30, 2011

Funeral Expenses

 Obama goes on a State visit to Israel.  While he is on a tour of Jerusalem, he has a fatal heart attack.
The undertakers tells the US diplomats: "You can have him shipped home for $1 million or you can bury him here in the Holy Land for $100."
The US diplomats go into a huddle and come back to the undertaker and tell him they still want Obama flown home.
The undertaker is puzzled and asks:  "Why would you spend $1 million to get him home when it would be wonderful to be buried here in this religious country and you would only spend $100?"
One diplomat replied:  "More than 2000 years ago a man died here, was buried here, and just 3 days later he rose from the dead.  We simply can't take that risk".

Monday, April 25, 2011

How do you explain being tired

My parents are on their way over this afternoon after traveling from West Palm Beach to Atlanta and now they are in Orlando to take us for dinner.  But today I'm weak, tired, blah... and I guess she could hear it in my voice, yes being MS tired gives me no energy to talk either.  She said to go take a nap, you will feel better.  Go take a shower, that will wake you up.  My husband says the same thing.  No-one seems to understand this "tiredness" feeling with MS.  Can any of you explain it to me in a way I can explain it to my family and friends.  My MS is the cognitive kind, not immobility, therefore I cannot seem to explain things properly.  I hope you can understand what I'm saying and I look forward to your comments.  Thanks guys.

Sunday, April 24, 2011

My Blackberry peeps

I know this is really my site about living with MS, but I have noticed that I have a lot of visitors from various Blackberry sites I belong to and if you are one of my Blackberry peeps coming to visit, please check out the Z-Man Blog and Forum (you will find links over on the right ---------------).  I know a lot of you have been already, but if not, head on over there and have some fun.

Now back to me (LOL).  Haven't been riding much over the weekend as it is so friggin hot and I am barely able to breathe in this weather and I have been managing to sleep late, so by the time I wake up, it's hotter than hot.  I am making a roast today for Easter.  I don't celebrate but since today is Easter and I have a roast to cook, it has become the Easter Roast.  I am also gonna try Yorkshire Puddings.  I have never ever made them, even though why I was born and raised is in the title, I figured the roast was a good way to try them.  I have the recipe and instructions from my friend and I'm going to try it out.  Hubby has no idea what they are so they will be a surprise and if they don't work out, he will never know the difference.  The hard part is figuring out how to make gravy, so after this post, I'm on a mission. 

For some other unknown reason, I keep getting requests for Twitter followers... I feel so loved (ha ha).  Nope, I'm not interested in those porning their sites!!! nor am I interested in sex enhancement items, but to know someone is waiting with bated breath for me to tweet a twit, it feels good.  (Keep waiting as I don't tweet much).  Anyway, I hope you all have a great Easter and that you find lots of eggs... and for those of us with MS, please keep the MonSter away.

Thursday, April 21, 2011

This is what MONO left me

I forgot to mention it on the last post but if you take a look at the picture you will see a "grey" spot in my hair.  I got that when I had mono and the doctor told me it was because my temperature was so high it killed the hair in my head and that it would eventually fall out.  Needless to say, for the past 36 years it just grows gray and no matter how much I color my hair, that spot does not color.  It is also odd because that spot of hair is on the left side and all my symptoms and brain lesions are on the left side.  Just wanted to share LOL...

Tuesday, April 19, 2011

Multiple sclerosis tied to low sun, mono virus CBCCBC – Tue, 19 Apr, 2011 12:40 PM EDT

I had a serious dose of mono at 14, I remember being so upset to miss the beginning of high school.  I was bedridden for four or five months.  This article is interesting reading.  Would be interesting to see how many really did have mono at a young age.  Oh, and being from England originally is another common cause.

Multiple sclerosis tied to low sun, mono virus
The odds of developing multiple sclerosis may be higher in people who’ve had infectious mononucleosis and been exposed to low levels of sunlight, a new British study suggests.
Multiple sclerosis is the most common disease of the central nervous system in young adults of Northern European descent, research shows. MS cases are also more common at higher latitudes in temperate climes.
Dr. George Ebers of the University of Oxford and his colleagues found mononucleosis and the effects of exposure to less intense sunlight together explained 72 per cent of the variance in MS prevalence across England.
The study in Tuesday's issue of the journal Neurology also showed the intensity of ultraviolet B exposure, a type of radiation from the sun, alone explained 61 per cent of the difference in MS cases between those living in northern and southern parts of the country.
"When our data are taken in combination with others, it gives confidence that there is a pressing need to investigate the role of vitamin D and [infectious mononucleosis] and their interaction in the pathogenesis of MS," the study authors wrote.
"At present there are no effective vaccines or treatments targeting EBV, but their development could complement vitamin D supplementation as potential interventions that might result in a reduction in the prevalence of this often devastating disease."
To come to those conclusions, Ebers' team analyzed hospital records of 56,681 cases of multiple sclerosis and 14,621 cases of mono over seven years, as well as NASA data on UV intensity in England.
Given that our bodies make vitamin D when exposed to UVB, it is possible that vitamin D deficiency may lead to abnormal response to the Epstein-Barr virus, Ebers speculated.
The Epstein-Barr virus is a herpes virus that is extremely common and causes no symptoms in most people. But when teens or adults contract the virus, it can lead to infectious mononucleosis. The role of the virus in MS, if any, remains unclear.
Vitamin D also plays a role in the immune system. Low levels of the vitamin may lead to an abnormal response to Epstein-Barr virus such as infectious mononucleosis, the researchers said.
The study was funded by the Multiple Sclerosis Society of Great Britain and Northern Ireland, the Medical Research Council and the Wellcome Trust.

634 yards

Once around the block - and I'm POOPED... or should I say out of breath - BUT... I did it.  Lulu isn't on the bike yet as I have to get a basket and some mirrors, being partly deaf, and a little unbalanced, I can't really turn my head to see if anything is behind me (LOL).  but once around the block is enough for right now.. maybe I'll go out again when the sun goes down.  PS:  Thanks for ALL your comments and encouragement, I will keep you all posted.  it is YOU that gives me encouragement and someone to report to with my progress.

Monday, April 18, 2011

Getting on a bike - after 30 years

After reading many of the MS blogs in depth, and I mean in depth (having been up all night, I just couldn't stop reading some of them), I have come to realize that I need to write more about my life with MS.  While I haven't felt the urge to write about my MS and it's consequences, I feel that by my sharing it will a) get some stuff off my chest, b) maybe help others with similar problems and c) get to "talk" to more of the MS bloggers.  I spend my mornings home alone, just me and the three dogs.  Hubby gets home around noon or 1:00pm but that makes no difference because as soon as he steps out of the shower he takes a nap for a couple of hours.  He does get up at 5:30am and comes to bed pretty late at night so no biggie to me.  I get pretty bored although I do have my cross stitch to keep me occupied but some days I just don't feel up to it.  And talk about energy, I have NONE.  I tried walking around the block with the smallest dog but it is so hot here in Florida, especially in the afternoons.  But today I am going out to look at a bicycle.  A two-wheeler.  I haven't been on a bike for about 30 years so maybe some future stories will be of some "falls".  I want to get a basket on the front so I can put Lulu in for the ride.  Now I just need motivation to get up and go....

Two and a half months to go before Medicare kicks in (can't wait).  I haven't seen a doctor or had an MRI for two years (since Cobra expired and while waiting the 29months for Medicare to kick in).  I'm kind of dreading all the dr visits but I guess it's got to be done.  Although it's going to hurt monetarily, at least I can see if my MS has progressed in the past two years with being on no medication.  I tried the LDN route, but it didn't work for me.  The Copaxone, forget it, I could not physically do the shots day after day.... I stopped after three months.  The Rebif caused major relapses with a steroid drip for three days which I'm still getting the bill for so who knows what, if anything, I will try next.  If there is no change in the past two years I will most probably stay off every MS drug, although I have a feeling it has become worse.  The pain in my left leg comes more often now and the pins and needles and numbness are almost constant.  I am hoping it may be because I don't do much during the day and hopefully the "biking" will help.  I really really want to exercise but I just have no energy.  I tried doing the exercises on my Wii game but the jumping up and down (I don't wear a bra) ha ha is no good and the bending up and down is even worse... I feel like such a failure.  I am putting on weight but not from eating... from not exercising.  I rarely eat enough, although what I do eat is all wrong.  Went food shopping Friday and bought nothing for myself to eat because I wasn't really in the mood to shop so I just bought the essentials.  At least with a bike, I can ride to the store if necessary before hubby comes home with the truck.

I have blocked all unknown numbers from my phone as I can't take the stress of debt collectors.  I know I owe... but what can I do, you can't get blood from a stone.  But if you really want my blood, come and get it.

I hope you all have a good day.  Thanks for reading my blog... i will keep you updated on the biking.  (My biking partner (below) - Lulu)

Friday, April 15, 2011

Side by Side

A woman's husband had been slipping in and out of a coma for several months, yet she had stayed by his bedside every single day.  One day, when he came to, he motioned for her to come nearer.
As she sat by him, he whispered, eyes full of tears, 'You know what?  'You have been with me all through the bad times.  When I got fired, you were there to support me.  When my business failed, you were there.  When I got shot, you were by my side.  When we lost the house, you stayed right here.  When my health started failing, you were still by my side...You know what Martha?’
'What dear?' she gently asked, smiling as her heart began to fill with warmth.

  'I'm beginning to think you're bad luck...’

Sunday, April 10, 2011

Exacerbation - do you know when you're getting it?

I have that feeling... when my teeth/gums start aching, my left leg feels like it's carrying a cement block and am fatigued (having done nothing today).  I remember for many years I would go to the dentist complaining of terrible pain in my gums at the back of my mouth where my wisdom teeth should have been and they could never find any problems.  Same when I used to get the tingling on the left side of my face, I was constantly told it was Bell's Palsy.  Amazing, now that I've been diagnosed with MS, every illness falls into that category.  I am guessing 20 years ago MS was not as prominent as it is nowadays.  Got off topic sorry, but anyway, does anyone get that "feeling" before getting a flare up?  I'm hoping not, but if today is anything to go by, I am doomed.

Thursday, April 7, 2011

A pirate's life is not a happy one

A  pirate walked into a bar, and the bartender said, "hey, I haven't seen you in a while.
What happened? You look terrible.
"What do you mean ?" said the pirate, "I feel fine"
 "What  about the wooden leg? You didn't have that before."
"Well,"  said the pirate, "We were in a battle, and I got hit with a cannon
ball, but I'm fine now."
The  bartender replied, "Well, OK, but what about that hook? What happened
to your hand?"
The  pirate explained, "We were in another battle. I boarded a ship and
got into a sword fight.
My hand was cut off. I got fitted with a hook but I'm fine, really"
"What  about that eye patch?"
 "Oh,"  said the pirate, "One day we were at sea, and a flock of birds flew
over. I looked up, and one of them shit in my eye."
"You're  kidding," said the bartender. "You couldn't lose an eye just from
bird shit."
"It  was my first day with the hook."

Sunday, April 3, 2011

The coat - watch closely

The first time you watch this, you won’t believe your eyes.

The second time you watch it, you won’t believe your eyes.